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Hi, I’m Lynda and I live in Canberra with my husband, 4 leg
fur child and have two wonderful adult sons.
In 2010 I was diagnosed with a mass on the pancreas and
liver mets. After 8 inconclusive biopsies, it was assumed I had Pancreatic
Cancer and I was told to get my affairs in order. I had 15months of weekly IV
chemo and basically lived scan to scan (monthly).
Following a 2nd
opinion, I pushed for further investigation and a GA68 scan. Finally, 2 years
after my initial diagnosis and unnecessary chemotherapy, NETs were confirmed.
During this time there was no support in Canberra for NET
patients and I felt extremely isolated and alone.
In 2017, my husband Simon and I restarted the Canberra NET
Support Group, which I still facilitate.
We have a wonderful group of patients and carers that come together to
support each other.
I’m passionate about equal access to treatment for all NET
patients, especially those in regional Australia.
I’m very excited to be a part of the Consumer Advisory Group
(CAG), and look forward to working with The Unicorn Foundation and other
members of the CAG, to improve the health outcomes for all NET patients.