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UF Consumer Advisory Group
We would like to welcome our newly appointed Consumer Advisory Group (CAG). The Unicorn Foundation CAG is made up of volunteers from around Australia, who have been affected in some way by Neuroendocrine Cancer. We are so grateful to this exceptional group of 13 members who will help guide the Unicorn Foundation's activities, from a consumer perspective, and identify and help resolve unmet needs in our community.
Key activities of the group fall under four work streams:
- Advocacy / Lobbying
Consumer Advisory Group Members:
Experience: MEN 1, Pancreatic NET (pNET) and type 1 diabetes
Experience: Bowel NETs
Experience: Small Bowel NETs, Liver METs
Experience: pNET, Liver METs, MEN1, type 1 diabetes
Experience: Mother of Paraganglioma and SDHB affected children
Experience: pNET, Liver METs
Experience: Wife with lung NET, secondary METs
Experience: Appendicle NET
Experience: Wife with pNET, MEN1
Experience: MEN1, secondary NETs, type 1 diabetes
The Unicorn Foundation is looking forward to working on exciting projects with our CAG, and delivering more services to NET Cancer patients around Australia. Watch our news section for our latest updates.